Girlies

Girlies
Isla, Hope and Grace

Thursday 26 March 2015

Recipe: dairy free fudgesicles & cheerio, peanut butter treats

It can be difficult to find yummy treats that is part of the girls diet. I feel bad that they can't just eat anything without being in pain. With summer coming and living in Arizona I am constantly looking for cold treats for the girls. Today I tried dairy free fudgesicles, after all who doesn't like chocolate?

 DAIRY FREE FUDGESICLES
1 can full fat coconut milk
1 cup almond milk
3 tbsp cocoa
1 tsp vanilla
1/4 tsp liquid stevia or maple syrup, honey, agave nectar

Put everything in the blender and mix. Once you have it all mixed together then pour in Popsicle molds and freeze. 


Next I made Cheerios, peanut butter treats. The girls can't have marshmallows unless I make vegan ones. My husband was looking in the pantry and there was quite a bit of Cheerios so then I got online to figure out a snack to make for them. I ended up make cheerio treats.

CHEERIO TREATS
1/2 cup peanut butter
1/2 cup honey
3 cups Cheerios

Put the honey and peanut butter in a pot and mix together til it's all melted. Once it's all melted mix in the Cheerios. Pour in an 8 x 8 pan and chill in the refrigerator for an hour.

Hope you enjoy these!! 

Saturday 21 March 2015

March National Lymphedema Awareness month

March is national Lymphedema awarenss month. Lymphedema is represented by the colors aqua and ivory as well as butterfly. Here is a link that I found that I thought was interesting as to why the butterfly. I hope you take some time to read it.
http://www.stepup-speakout.org/History_of_Lymphedema.htm

Recipe: cheeseless macaroni & cheese

Every kid loves macaroni & cheese but what about those kids that have a dairy and gluten allergy?
I found this recipe and decided to give it a try. Isla hasn't wanted to try it yet but her sister, Scarlett did and liked it. I made some tonight and put it in a blender to purée for the babies but they fell asleep so I will give it to them tomorrow for lunch. I myself thought it tasted good.

Cheeseless Mac & cheese
1 head of cauliflower
3 carrots
Gluten free noodles

Cut off the stems of the cauliflower and put into a pot and boil. While the cauliflower is boiling peel and cut the carrots. Add them to the pot of cauliflower. When the cauliflower is soft and can be cut with a fork it is ready. Now drain the cauliflower and carrots. Put in the blender and add your choice of milk, I used almond milk. Purée it to your desired thickness. Now mis it in with the noodles add salt and pepper to taste and serve.

Enjoy!!!

Friday 20 March 2015

update on Isla, Grace and Hope

 March has been a busy month for us, however everyone is doing well and healthy!!!
                                                     Isla
Isla has started getting her legs taped each week at physical therapy. It seems to be working pretty well!! She is still going to be wearing compression but this allows us to interchange them. Last summer Isla broke out in heat rashes most of the summer from the stockings so she ended up not wearing them. With not wearing her stockings she then had a lot of bowel issues and spent a lot of the  summer in pain. We are hoping that by getting her legs taped she won't be in a lot of pain this summer and that the swelling will stay down!!! Isla also had to have major dental work done!! Due to her diet not allowing dairy she ended up with a calcium deficiency that caused a lot of problems with her teeth. She went in and had a root canal, 2 crowns, 4 fillings and x-Rays. She was a champ!!!! She did come home groggy and had a rough few hours at home but with 24 hrs was pretty much back to her normal playful self. To help with her calcium deficiency she is now drinking orange juice high in calcium as well as having more greens added to her diet. The dentist has requested that when Hope & Grace get their first tooth to bring them in for check up.

                                                 Grace and Hope
Grace & Hope turned 6 months old!!! My little chunky monkies are weighing in at over 17lbs. They hate both in the 90% tile. Their pediatrician is extremely happy with their growth. They are both rolling all over and talk like crazy. We have started introducing foods to them. We found a gluten free baby food that has a varietynof foods for them that are on their diet!! So far they are loving a mix of carrots, sweet potatoes and raisins as well as quinoa. I have been making a lot of their food. I have been putting brown rice, oatmeal and quinoa in the blender and grinding it up to a powder and then when I need it just add either water or some of their formula to feed it to them. They are not receiving physical,therapy yet or wearing stockings. We are waiting til they start crawling and then we will go from their as requested by the physical therapist and pediatrician. Their dad and I have been shown how to do MLD so we do that at home with them ourselves as of now.

These girls are amazing!! I couldn't have been blessed with more amazing girls!! They are so full of life and energy. They make me smile and laugh every day. Isla's love for life astonishes me, she refuses to let anything stop her and is an inspiration to her whole family.

Saturday 7 March 2015

The beginning of our story

    Hello my name is Elisa.  I am a stay-at-home mom of twin toddler girls, Isla & Scarlett and one-month-old girls, Hope & Grace. I love to make things from crafts to all kinds of baking treats and home-cooked meals so that I know what's going into my familys bellies. 
    My inspiration for this blog is my daughters Isla, Hope, and Grace. When Isla was born we noticed there was something different about her. Her feet were incredibly swollen to the point that they were almost white. She was tested for Turners Syndrome as well as many other things, but everything came back negative. However, I knew there was
something that was being missed. My husband and I took her to specialists, and we were basically told that I was just a "first time mom" and there was nothing wrong with my child. The swelling in her lower extremities only seemed to get worse, and it was very obvious she was in pain.  I refused to give upmy husband and I were determined to find out why our baby girl was in so much pain so we could help her. With the help of my mom, sister, and cousin we continued to do our own research. After months of looking, we stumbled across the same article about a little boy in Britain with Milroys disease. I read the article, and it was like reading our stories of research to find out what was wrong, and I had to even do a double take on some of the pictures because they looked like my Isla. What a relief; I finally felt like we were starting to get somewhere! I was able to do some research, and then emailed the links to my daughters pediatrician. She immediately had us proceed as if we had the official diagnosis and began to help us get appointments with the right doctors. 
     Once we started seeing the right doctors it seemed like we were heading in the right direction. First, we got her in with a physical therapist at Northern Arizona Rehabilitation & Fitness center. She began seeing her therapist Sheryl, twice a week. She started off with aquatic therapy then went to massage therapy. Next we got her into see a pediatric dermatologist, and it was there that we got her diagnosis!!! What an answer to prayer!  We still needed to get her into see a genecist. We are still waiting for that appointment but are hopeful that we will get it soon. 
    I came across a Facebook page for people with lymphedema (a side affect of Milroys) and joined the group. Through that group called lymphedema I was able to get some more information and talk to people about what my daughter was going through. Since she was old enough to talk and verbalize her pain, it was a blessing to be able to talk to people on this site. It was through talking to people on this site that I learned about the RAD diet. I was able to come up with lists of foods that she could and couldn't have. These were foods that helped with inflammation. However, in my research I wasn't able to come cross recipes to go along with the diet.
      Because of this, I would like to share the recipes I come up with for other people struggling with lymphedema. As a stay-at-home mom of twins and with just my husbands income, things can get tight, not everything we need to help the girls is covered by insurance, and let's be honest a little extra income couldn't help with four kids! I decided that I would make a blog and write in it the recipes I make for the girls. Along with those recipes, I will share how she responded to the things I made as well as updates as to how they are progressing. That was how I made the decision to charge for people to get the recipes. I came up with $2 a month and you will get my recipes and from time-to-time pictures of my beautiful girls